Electronic informed consent information for residual newborn specimen research: findings from focus groups with diverse populations

We developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen resources biobanking. Newborn screening programs test treatable diseases leave residual biospecimens that can in future research activities. conducted focus groups interviews with three diverse communities determine (a) how well the tools worked (b) participant familiarity NBS. Participants preferred noted they were unaware NBS could research. Providing information was key issue.